Improving data collaborations for the common good: developing a governance framework

Abstract

It is in the context of increasing recognition of the value of data sharing for various purposes, including research, policy development, and innovation, that the data-sharing initiatives for common good have emerged. Even with the growing number of cases and increasing evidence showing the benefits and value of data collaboration, to this day, most of the initiatives have been one-off, limited experiences, yet substantial in impact. Although studies are emphasizing the straits, there is a gap in research geared toward the solution to the challenges faced by data collaborations. This research uphold that it is necessary to expand knowledge about governance in data collaborations, supporting the thesis that just a broad view of governance is not enough for the long-term sustainability of the initiative. The following research question is proposed: What is the role of governance in sustaining data collaborations for the common good? This thesis proposes that the challenges faced by data collaboration initiatives can be addressed by viewing them through the lens of downstream problems. Additionally, the functions proposed by micro-governance will support the development of a collaborative environment. A qualitative research approach with an exploratory design was chosen, specifically employing the case study method. A single case study was selected due to access and the complexity of the phenomenon, particularly in Brazil. The chosen case was 'Minha Saúde Digital' (MSD), active in Rio Grande do Sul, Brazil, since 2020. The evidence collected during the research emphasizes the importance of micro-governance functions in promoting a collaborative environment within data collaborations. When effectively performed, these functions substantially contribute to the cohesion and success of the collaborative effort. However, the debate revolves around identifying the appropriate roles and responsibilities within the collaboration. Therefore, three new propositions are put forward regarding the roles of the convener and the orchestrator in the context of micro-governance.